Resources for Family Caregivers

Local (NY City and State) Resources

Caring Kind NYC
CaringKind* is New York City’s leading expert on Alzheimer’s and dementia caregiving. With over 30 years of experience, we work directly with our community partners to develop the information, tools and training to support individuals and families affected by dementia.
We offer a 24-hr Helpline (646) 744-2900 run by professional staff; individual and family counseling sessions with licensed social workers; a vast network of support groups; education seminars and training programs; early stage services and a wanderer’s safety program. We believe in the power of caregiving and seek a world where everyone dealing with dementia has the support they need, when they need it.

DOROT
DOROT's educational and support network for caregivers is called Caregivers' Connection. Among other things, this resource provides support groups, workshops and classes. There is a very nominal registration fee for Caregivers' Connections and participation in certain programs.

NYC Department for the Aging
This site includes links to a number of helpful resources for family caregivers, including Benefit QuickCheck, a tool that makes it easy for caregivers to get information on benefits and services that may be available to help older New Yorkers in need.

New York State Office for the Aging
Users can access a list of "general caregiving resources" and search for other resources for seniors from the State of New York. The site also includes information for "Grandparents and Kinship Caregiving,"  Programs for Families and Caregivers and extensive lists of both state and national caregiving resources.

National Resources

The Alzheimer's Association
Caregiving resources are plentiful on this site and include: a caregiver notebook, information on daily care, a caregiver stress check and more.

The ARCH National Respite Network and Resource Center
The site’s National Respite Locator is an interactive tool to help caregivers locate respite services in their community. A respite service provides temporary care to children or adults with disabilities, or chronic or terminal illnesses.

Caregiver Action Network 
Users get access to a comprehensive library of information that includes fact-sheets for caregivers, information on workshops, information on agency contacts and links to organizations that offer caregivers support.

ChaplainsOnHand
ChaplainsOnHand from HealthCare Chaplaincy Network provides online spiritual comfort for the seriously ill and their family caregivers ̶ whoever you are, whatever you believe, wherever you are. Spiritual distress can raise questions about the meaning of a new or ongoing health crisis and affect you physically and emotionally, too.

The Department of Health and Human Services—Administration on the Aging
In addition to a robust collection of information for older adults, caregivers and professionals, the Administration on Aging (AOA) site includes a tool that allows users to get information on state agencies on the aging and available local resources.

Medicare.gov: the Official U.S. Site for Medicare
Visit for information on caregiving topics, condition-specific resources, financial and legal support options, a discussion board and more.

National Alliance for Caregiving
This non-profit coalition of more than 40 national family caregiving organizations posts helpful surveys and reports, links to additional resources, a state-by-state listing of caregiving coalitions and more.

National Counsel on Aging
Among the caregiving resources accessible on this site is BenefitsCheckUp®, a screening tool that directs users to location-specific benefits possibilities.

Next Step in Care
The Next Step in Care: Family Caregivers and Health Care Professionals Working Together campaign recognizes, trains, and supports family caregivers who need help during times of transitions in care. Among other things, this site offers information on hospital stay and discharge planning, rehabilitation and home care.

Share the Care
The site provides information on local training seminars, workshops and lectures designed to improve both caregivers' and care recipients' quality of life.

Talking Alternatives
Through mediation, this firm helps families who are struggling with caregiving, to resolve their conflicts through communication. Talking Alternatives aims to help resolve disagreements by ensuring that all family members express their ideas and concerns and in turn are heard by all whom are involved.

VideoCaregiving
Chicago-based Terra Nova Films' Visual Education Center for Family Caregivers offers free online videos providing information on a range of topics like: caregiving and recovery after a stroke; how to approach a discussion about nursing homes; caregiving and Alzheimer's; how to lift and transfer a person who is bedridden and more.

AAA(National Association of Area Agencies on Aging)
This is a resource we’d like to highlight at a national level.  You’ll see that the link brings you to a page that allows you to input your location, and it provides you with local resources that may be helpful to members.

Talk With Greg: Conversations in Caregiving

For many years, EmblemHealth has been working closely with experts on family caregiving, from financial advisers to community leaders.

In this video series — hosted by Greg Johnson, Senior Advisor for Family Caregiving — these experts give practical advice on how to manage your caregiving responsibilities.

Military and Veteran Caregiving Family Caregiving Legal and Financial Issues The Emotional and Spiritual Worlds of Family Caregiving The Physical World of Family Caregiving

Family Caregiving — You Are Not Alone

A Video Series From Care for the Family Caregiver

  • Introduction to the World of Family Caregiving
  • The family caregiver, also known as the “silent patient,” holds an important role in the world of caregiving.
  • Families of Origin, Families of Choice
  • We are all part of a family, whether it is a family of origin (birth family) or a family of choice (friends, neighbors, social group, face groups, etc.).
  • The Many Faces of Family Caregiving
  • There are many faces of caregiving. Caring for seniors; seniors raising grandchildren (kinship); caring for those with end-of-life issues in the middle of life; long-distance caregiving; caring for persons with disease-specific needs or chronic conditions; children as family caregivers; caregiving for veterans. Often, caregivers are caring for more than one person ("the sandwich generation").
  • Maintaining the Physical
  • There are resources that can help make caring for yourself and others easier.
  • Maintaining the Emotional
  • Professional support groups are available to help you maintain your emotional balance.
  • Maintaining the Spiritual
  • Spiritual guidance can help you walk with the care recipient — not into their lives.
  • Grief
  • You are not alone. There are resources available to help you with the grief of losing someone you are caring for.
  • The Gifts of Family Caregiving
  • Use your caregiver expertise to plan ahead for your own future caregiving needs.

Caregiving Thought of the Month

Watch brief video messages by Greg Johnson, Senior Advisor, Family Caregiving.

Stay tuned as we post them each month with a different color.