The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one.
National Family Caregiver Support Program
The National Family Caregiver Support Program (NFCSP), established in 2000, provides grants to States and Territories, based on their share of the population aged 70 and over, to fund a range of supports that assist family and informal caregivers to care for their loved ones at home for as long as possible.
Are you a family caregiver in need of information or assistance? Are you interested in learning more about the programs and services that may be of assistance to you or your loved one? The Eldercare Locator, a public service of the U.S. Administration on Aging, is the first step to finding resources for older adults in any U.S. community. Just one phone call or Website visit provides an instant connection to resources that enable older persons to live independently in their communities. The service links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers.
Next Step in Care
Next Step in Care provides easy-to-use guides to help family caregivers and health care providers work closely together to plan and implement safe and smooth transitions for chronically or seriously ill patients.
Lotsa Helping Hands
Lotsa Helping Hands is a free caregiving coordination web service that provides a private, group calendar where tasks for which a caregiver needs assistance can be posted. Family and friends may visit the site and sign up online for a task. The website generates a summary report showing who has volunteered for which tasks and which tasks remain unassigned. The site tracks each task and notification and reminder emails are sent to the appropriate parties.
Caring.com is the leading online destination for family caregivers seeking information and support as they care for aging parents, spouses, and other loved ones. Caring.com offers helpful content, advice from leading experts, a supportive community of caregivers, and a comprehensive directory of eldercare services. Caring.com’s carefully researched and expert-reviewed content includes advice from a team of more than 50 trusted leaders in geriatric medicine, law, finance, housing, and other key areas of healthcare and eldercare.
- Caring.com’s Steps & Stages offers a free guide to Alzheimer’s care. Expert advice and practical tips provided in a Custom Care Guide and e-newsletter help family caregivers learn what to expect, what to do, and how to cope with Alzheimer’s.
- Caring.com also publishes findings from research with family caregivers at https://www.caring.com/about/news.
Financial Steps for Caregivers
WISER (Women’s Institute for a Secure Retirement)
Financial Steps for Caregivers: What You Need to Know About Money and Retirement is designed to help you identify financial decisions you may face as a caregiver. The decision to become a caregiver can affect both your short-term and long-term financial security, including your own retirement. For more information on planning for a secure retirement, please visit https://www.wiserwomen.org.
National Transitions of Care Coalition
The last concern most individuals have when they or their loved ones are dealing with a health situation is ensuring effective communication between their doctors, nurses, social workers and other health care providers. However, poor communication between well-intentioned professionals and an expectation that patients themselves will remember and relate critical information that can lead to dangerous and even life-threatening situations. NTOCC has brought together industry leaders who have created resources to help you better understand transitional challenges and empower you as part of the care giving team.
Family Caregiver Alliance
Established in 2001 as a program of Family Caregiver Alliance, the National Center on Caregiving (NCC) works to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country. Uniting research, public policy and services, the NCC serves as a central source of information on caregiving and long-term care issues for policy makers, service providers, media, funders and family caregivers throughout the country.
Caregiver Action Network
Resources from the Caregiver Action Network, including a Peer Forum, a Story Sharing platform, the Family Caregiver Tool Box and more. CAN also provides support for rare disease caregivers at https://www.rarecaregivers.org
U.S. Food and Drug Administration, Office of Women’s Health
Tips for Caregivers
FDA Office of Women’s Health understands caring for a loved ones can be rewarding, but challenging. FDA’s Tips for Caregivers website provides tools to help caregivers manage the care of their loved ones. The website provides tips for caregivers of older adults, young children, teens and people with special needs. The website also highlights 7 tips for all caregivers to know. FDA Office of Women’s Health also provides information on women and clinical trials. To learn more, visit: fda.gov/womeninclinicaltrials
Caring Kind NYC
CaringKind* is New York City’s leading expert on Alzheimer’s and dementia caregiving. With over 30 years of experience, we work directly with our community partners to develop the information, tools and training to support individuals and families affected by dementia.
We offer a 24-hr Helpline (646) 744-2900 run by professional staff; individual and family counseling sessions with licensed social workers; a vast network of support groups; education seminars and training programs; early stage services and a wanderer’s safety program. We believe in the power of caregiving and seek a world where everyone dealing with dementia has the support they need, when they need it.
DOROT's educational and support network for caregivers is called Caregivers' Connection. Among other things, this resource provides support groups, workshops and classes. There is a very nominal registration fee for Caregivers' Connections and participation in certain programs.
NYC Department for the Aging
This site includes links to a number of helpful resources for family caregivers, including Benefit QuickCheck, a tool that makes it easy for caregivers to get information on benefits and services that may be available to help older New Yorkers in need.
New York State Office for the Aging
Users can access a list of "general caregiving resources" and search for other resources for seniors from the State of New York. The site also includes information for "Grandparents and Kinship Caregiving," Programs for Families and Caregivers and extensive lists of both state and national caregiving resources.
The ARCH National Respite Network and Resource Center
The site’s National Respite Locator is an interactive tool to help caregivers locate respite services in their community. A respite service provides temporary care to children or adults with disabilities, or chronic or terminal illnesses.
ChaplainsOnHand from HealthCare Chaplaincy Network provides online spiritual comfort for the seriously ill and their family caregivers ̶ whoever you are, whatever you believe, wherever you are. Spiritual distress can raise questions about the meaning of a new or ongoing health crisis and affect you physically and emotionally, too.
The Department of Health and Human Services—Administration on the Aging
In addition to a robust collection of information for older adults, caregivers and professionals, the Administration on Aging (AOA) site includes a tool that allows users to get information on state agencies on the aging and available local resources.
Medicare.gov: the Official U.S. Site for Medicare
Visit for information on caregiving topics, condition-specific resources, financial and legal support options, a discussion board and more.
National Counsel on Aging
Among the caregiving resources accessible on this site is BenefitsCheckUp®, a screening tool that directs users to location-specific benefits possibilities.
Share the Care
The site provides information on local training seminars, workshops and lectures designed to improve both caregivers' and care recipients' quality of life.
Through mediation, this firm helps families who are struggling with caregiving, to resolve their conflicts through communication. Talking Alternatives aims to help resolve disagreements by ensuring that all family members express their ideas and concerns and in turn are heard by all whom are involved.
Chicago-based Terra Nova Films' Visual Education Center for Family Caregivers offers free online videos providing information on a range of topics like: caregiving and recovery after a stroke; how to approach a discussion about nursing homes; caregiving and Alzheimer's; how to lift and transfer a person who is bedridden and more.
AAA(National Association of Area Agencies on Aging)
This is a resource we’d like to highlight at a national level. You’ll see that the link brings you to a page that allows you to input your location, and it provides you with local resources that may be helpful to members.
Other Key Resources
Resources for Caregivers-2007 Edition (PDF)
Aging Parents & Common Sense – 5th Edition (PDF)
Aging Parents & Common Sense Resource Directory (PDF)
Supports for Single Parent Caregivers Literature Review (PDF)
Caring Today, Planning for Tomorrow (PDF)
Planning for Your Retirement and Long-Term Care (PDF)